Practical Tips for Engaging Children, Youth, and Families in Research

Rae shares her personal and professional journey, describing how meaningful partnerships are built through trust, emotional accessibility, and a deep awareness of the lived realities of patient partners. From the structure of the FER training program to the philosophy that underpins it, this episode reveals what happens when research becomes a space for coexistence, not just collaboration.

Listeners are invited into a conversation that challenges the traditional boundaries of research training, emphasizing community, care, and evolving identity for both researchers and patient partners.

Listen Here: https://asperusual.substack.com/p/s3e5-engagement-as-a-psychosocial

More than just a Tick Box: Building Back Better through Family Engagement

Children and their family members have unmatched, dyadic impacts on each other’s health. This is especially prominent in children and families that, due to unfortunate circumstances, are frequently connected with hospitals, researchers, and health systems. As such, it is imperative that we engage families in healthcare processes, and recognize their stories, experiences, and input as the valuable forms of knowledge that they are. We recently had the opportunity to sit down and discuss family partnership with Rae Martens. Rae provides a unique perspective on this topic as she has seen child healthcare from the lenses of both a parent and a professional. On this episode of SPARK: Conversations, Rae helps us dig into best practices in family engagement and the importance of the human aspect in child healthcare. She also offers advice to practitioners on the balancing act between involving family partners, while avoiding causation of potential burnout and discomfort.

Listen Here: https://www.buzzsprout.com/1374217/episodes/10093076

Attending In-person Research Conferences When Your Patient or Family Partners Have a Chronic Illness

Read Here: https://pxphub.org/attending-in-person-research-conferences-when-your-patient-or-family-partners-have-a-chronic-illness/