Rae Martens
Writer, Science Communicator, Coffee Drinker
Writer, Science Communicator, Coffee Drinker
"THE TRUE MEASURE OF A NATION'S STANDING IS HOW WELL IT ATTENDS TO ITS CHILDREN, INCLUDING THEIR HEALTH, SAFETY, MATERIAL SECURITY, EDUCATION AND SOCIALIZATION AND THEIR SENSE OF BEING LOVED, VALUED AND INCLUDED IN THE FAMILIES AND SOCIETIES INTO WHICH THEY ARE BORN" - UNICEF, INNOCENTI REPORT CARD 2007
DICES-L: Common themes on why or when people roll the dice and choose to engage in research
By Kristina McGuire and Rae Martens
Why does someone decide to get involved in research and what makes them stay? Drawing on patterns we see again and again in patient, family, and community engagement work, DICES-L names six themes that show up across that journey: Discovery, Investment, Catharsis, Empowerment, Sustainability, and Leadership.
This is a set of lenses for understanding the different reasons someone might roll the dice on engagement, at different points in their journey. Download the one-page infographic below to use in your own training, onboarding, or team conversations
Download Here: https://canva.link/ox701t60k8hncz3
Rae Martens is a disabled writer, advocate, and knowledge broker from Calgary, Alberta, specializing in neurodevelopmental disability research. Drawing on both professional expertise and personal experience, Rae bridges lived experience with research, healthcare, and policy, making evidence accessible and meaningful for patients, families, and communities navigating complex systems.
A passionate storyteller, Rae writes to foster understanding, kindness, and connection. Their first children’s book, Joy on Joy, was created with love and hope for every child who turns the page. Beyond writing, Rae develops resources, creates public education content, and engages communities online to challenge misinformation and support healthy, inclusive partnerships.
Rae’s work centers on meaningful patient and family engagement and the dynamics of whose knowledge is valued, particularly exploring the intersections of power, language, gender, and disability. Grounded, evidence-informed, and unapologetically patient-centered, Rae is committed to helping families and children feel seen, included, and celebrated.