Rae Martens
Writer, Science Communicator, Coffee Drinker
Writer, Science Communicator, Coffee Drinker
"THE TRUE MEASURE OF A NATION'S STANDING IS HOW WELL IT ATTENDS TO ITS CHILDREN, INCLUDING THEIR HEALTH, SAFETY, MATERIAL SECURITY, EDUCATION AND SOCIALIZATION AND THEIR SENSE OF BEING LOVED, VALUED AND INCLUDED IN THE FAMILIES AND SOCIETIES INTO WHICH THEY ARE BORN" - UNICEF, INNOCENTI REPORT CARD 2007
This blog emphasizes the importance of supporting lived experience partners in advocacy spaces, noting that while their involvement is a significant step forward, emotional safety and care are often overlooked. It offers practical suggestions for both organizations and individuals to create supportive environments that prioritize emotional well-being, provide preparation and debriefing, and acknowledge and repair harm when it occurs.
Link: https://patientpartnerresources.substack.com/p/supporting-lived-experience-partners
Rae Martens is a disabled writer, advocate, and knowledge broker from Calgary, Alberta, specializing in neurodevelopmental disability research. Drawing on both professional expertise and personal experience, Rae bridges lived experience with research, healthcare, and policy, making evidence accessible and meaningful for patients, families, and communities navigating complex systems.
A passionate storyteller, Rae writes to foster understanding, kindness, and connection. Their first children’s book, Joy on Joy, was created with love and hope for every child who turns the page. Beyond writing, Rae develops resources, creates public education content, and engages communities online to challenge misinformation and support healthy, inclusive partnerships.
Rae’s work centers on meaningful patient and family engagement and the dynamics of whose knowledge is valued, particularly exploring the intersections of power, language, gender, and disability. Grounded, evidence-informed, and unapologetically patient-centered, Rae is committed to helping families and children feel seen, included, and celebrated.